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Closing of the project in T.A.R. and launch of a pilot project on the Tibetan Plateau

After the release of the new Chinese law about international NGO’s, we were constrained to close down our project in Tibet Autonomous Regions last June, after 25 years of work… Despite the incomprehension and the deception, the Belgian team decided to not give up and to continue its commitment towards the Tibetan population.

This is why these last months, we have designed a new project in close collaboration with new Tibetan partners. The first phase will be a trial on greenhouse construction, basic health and hygiene promotion, as well as training on nutrition. The project location will be Qinghai and Sichuan provinces and the implementation will start in September 2017.

For more info please visit our “Project” page.

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Running the 20km of Brussels for the "ones that can't"

25 fabulous people took the challenge to run the 20km of Brussels to support KBD Fund on Sunday 28th of May!

In addition to the physical effort, they raised 4,000 euros for the KBD patients!

Congrats to these brave runners who all crossed the finishing line!

       

Thanks guys for this amazing challenge and effort! You are wonderful!

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KBD Fund at the BANFF Mountain Film Festival

The BANFF Mountain Film Festival is a festival of short films that stage intrepid persons in vertiginous setting.

For the 2017 edition, KBD Fund team was in Brussels for 2 nights (March 16th-17th) in order to present the organization and its project. The goal was to raise awareness among “mountain lovers” of what can be the living conditions of populations living on high plateaus.

Thank you to all the BANFF staff and volunteers! It was a great experience and hope we could repeat it next year!     

       
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Cooking class

 
In May, our fervent supporter Dominique decided to “renew the experience” after the success of the charity lunch in December. That’s why she organized two cooking classes whose profits have been entirely donated to KBDF.

 
Both events took place in the private kitchen of “la Rose Noire” in Hong Kong and gathered 15 participants.

Thanks to their generosity and Dominique’s dedication, HKD 11,000 HKD (€ 1,250) were given to KBDF and will be directly used to strengthen preventive measures in Tibetan villages.

        

 A big thank you to everyone!

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Charity Lunch

In December, our two big supporters in Hong-Kong, Dominique and Benedicte, made us an early Christmas gift. They organized a lunch in favour of KBD Fund.

With Benedicte as “master of ceremonies” and Dominique as chef, a group of 17 women had the chance to enjoy a delicious “Foie gras” lunch, as well as to discover our activities. A big success!!

   
                   
A big and warm thank you to Benedicte and Dominique and to every generous participant!
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Baroque music concert for KBDF

This year, The Baroque Music Festival in Famenne-Ardenne (Mubafa) offered to organize their first concert to support our organization. Belgian soloists (Julie Bailly, Marie-Catherine Baclin, Grégory Decerf …) will sing “English Baroque opera tunes”, accompanied by Ballo e Canto Ensemble and Terpsichore vocal Ensemble, and directed by Mr. Xavier Haag.



The Cultural House of Famenne-Ardenne (Marche-en-Famenne) will host this event October 9 at 20.00. Tickets are available here.
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36th SICOT World Congress
(Guangzhou, September 2015)

A symposium about Kashin-Beck disease was organized as part of the 36th SICOT (International Society of Orthopaedic Surgery and Traumatology) World Congress. Four papers from KBDF were selected. That’s why a part of our scientific team flew to Guangzhou (P. R. China) last September. The papers presented reflected the last progress of our research on the Kashin-Beck disease. It was also the good opportunity to meet Chinese colleagues to exchange and discuss about the subject.



Abstracts papers presented by KBDF team are available on the page 书 - 研讨会 - 出版

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Rare Disease Day

28th of February 2015


This year was the 8th edition of the Rare Disease Day. KBD became a friend of this organization which fight to raise awareness of policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.



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Rotary Leadership Award

In June 2014, KBDF received the Rotary Leadership Award, delivered by the Rotary Club of Shanghai to “honor and showcase outstanding individuals and programs that are making notable socially responsible achievements both in the city of Shanghai and throughout China”.


      


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Signature of a new agreement

On February 21 st, 2014, the 2 partners, the « Centre for Disease Control and Prevention (CDC)  » of the Tibet Autonomous Region and "Kashin-Beck Disease Fund" have signed a new agreement for 3 years. The signing ceremony took place in front of representative of the Regional Public Health Bureau and the Foreign Affairs Office of Tibet Autonomous Region.

           


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实验室培训

                       

2011年1月, 比利时   Liege   大学化学分析试验室的负责人 Georges Lognay 教授到拉萨十天,他来拉萨的目的是为了给自治区疾控中心试验室人员提供培训。几名地方病试验室的专家也参加了培训,参训人员对专家的培训感到非常满意,表达了希望能够再次参加这样的培训的愿望

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项目协议签字仪式


                       


2011年1月21日, 西藏自治区疾病预防控制中心和西藏大骨节病基金会合作项目双方负责人,西若绕登主任和芳索斯.马修博士共同签订了未来2年的合作协议。自治区卫生厅,自治区外事办公室项目办和疾病预防控制中心的领导也参加了协议签字仪式。

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大骨节病基金会项目评估活动


                                  

2010年12月,由第三方专家组成的评估组对项目进行了评估,评估活动由西藏自治区疾控中心和大骨节病基金会联合实施,评估活动还包括了在项目点的现场评估活动。评估组的评估结论是积极的,高度认可了项目给当地人带来的利益,特别是给儿童带来的利益。 

评估是我们项目协议续签必须经过的一个环节。

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青海玉树地震


                                     

 
2010年4月14日中国西部青海省发生7.1级地震, 玉树县是其中伤亡最为严重的地区.

    4月16日死亡人数报告达到791人大约有10,000人受重伤,并伴随着大量的房屋倒塌, 许多人面临食物短缺和没有地方居住.

   项目的合作伙伴,西藏自治区疾控中心立即派遣了一支由中心主任带领的救援队伍,同时,我们决定给玉树县的果青和甘达两个行政村所属的22个自然村,包括大约700户和2447人发送灾区急需的传统干粮糌粑.

    三天的时间内,大骨节病基金会在拉萨购买了7屯糌粑, 25日基金会职员央宗女士随着装满糌粑的大卡车前往玉树, 经过3天的行程后到达玉树县,当他们到达后区疾控中心救援队帮助她在两天的时间内将糌粑直接发放到了所有村民手中

   我们仍然在关注灾情的救援情况.

  你们的支持才使这一小小的帮助成为可能, 我们真诚的感谢你的支持和帮助!

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卫生部门和外事办公室领导到项目考察


           

我们的合作伙伴疾病预防控制中心的主任西绕若登,卫生厅和外事办公室的领导于2009年11月10日对项目在拉萨市所属林周县的项目点进行了视察,整个视察过程中的气氛非常愉悦,大家对项目所实施的各项活动都非常感兴趣.

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2009 年夏季,在美国


                

两名年轻的 “募捐者” 出售岩石为大骨节病基金会集资。

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项目成果汇报会


2009 年 5 月 25 日大骨节病基金会与合作单位西藏自治区疾病预防控制中心在拉萨组织召开了“西藏大骨节病研究和防治项目成果汇报”会。西藏自治区卫生厅和自治区外事办的有关领导出席了此次汇报会。汇报会的主题是汇报和讨论过去4年的项目成果(包括研究部分。

主要汇报内容有:

ü  西藏自治区大骨节病病情分布情况。

ü  西藏中部农村大骨节病病区儿童饮食摄入量。

ü  西藏中部农村大骨节病病区儿童佝偻病。

ü  西藏大骨节病儿童补充微量元素的效果。

ü  2004—2007 年谷物真菌研究和控制效果。

ü  今后大骨节病防治项目的计划。

汇报会的主要结论是,今后预先开展旨在提高大骨节病病区儿童营养水平和其他卫生项目。


                       

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为受灾区儿童送温暖

 
2009年10月6日在西藏西北发生了6.6级地震,地震中心离拉萨80公里的当雄县。我们已工作了15年多的尼木县续迈乡也受到此次地震的损失。

此次地震造成了10人遇难,50多人受伤,伤员在人民医院和军区医院得到了有效的治疗。

许多房子与学校倒塌,5000多人被迫在帐篷内过冬。

大骨节病基金会给2所寄宿学校学生提供了保暖的衣服、手套、帽子及鞋子。

此次活动该感谢你们的经济支持。


  我们代表受害者深深地感谢你们!



谢谢您


媒体

From Rotary Club Shanghai – March 24, 2015 – Pagoda N°220 – The Rotary Club of Shanghai and the Kashin-Beck Disease Program


From Rotary Club of Shanghai- February 25, 2014 – Last Meeting’s Highlights - Speaker: Francoise Mathieu. Pagoda N°172– 25 Feb 2014 and Pagoda N°173 – 4 Mar 2014.

From Rotaract Club of Shanghai– February 24, 2014 -  Speaker: Francoise Mathieu


From Rotary Club ShanghaiFebruary 16, 2014Pagoda N°209Updated Report for Rotary Club of Shanghai 


From Université de Liège - Gembloux Agro-Bio Tech. Newsletter : Septembre 20, 2013 - La maladie de Kashin-Beck au Tibet étudiée à Gembloux - by Coraline laurent

From   La Meuse - Luxembourg: Septembre, 17, 2012 -   Ils améliorent l'alimentation des Tibétains - by Nathalie Husquin

From Le Soir February 16, 2011  -  "Et si vous adoptiez un village tibétain ?"   -   By: Eric Burgraff

From OSIRIS news : December 2010 > February 2011   -   
L'HUDERF au Tibet   -   By: Marion Garteiser

From:
the Royal Geographic Society of Hong Kong October 29, 2009   -   "From Gaza to Tibet"   -   By: Françoise Mathieu

From  CORRIERE DELLA SERA
: June 21, 2009  -   lt Resta un mistero la malattia che svuota i villaggi cinesi -   By: Franca Porciani   

From :
 12 June 2009   -   lt A Medical Mystery in Middle China - Vol. 324. no. 5933, pp. 1378 – 1381 - DOI: 10.1126/science.324_1378     -    By : Richard Stone

From :
 Oct 21, 2008   -   lt Rare disease haunts poor Tibet plateau villagers   -   By: Lucy Hornby

From: Le Petit Shanghaien, May 2008   -   La maladie des gros os. Action humanitaire au Tibet     -   By: Sylvie Liu et Véronique Sohier

From: Infimag, le Magazine de l’Infirmière francophone (
T: 082 21 33 50), Mars 2008   -   Kashin-Beck Disease, Association, et Une infirmière au Tibet   -   By: Lili Dewitte

Belgian Newsletter – November 2007 – Novembre 2007
  -   Rencontre avec Françoise Mathieu  Consulaat generaal van België te Shanghai -    Consulat général de Belgique à Shanghaï

From : Shanghai Daily, June 25th, 2007   -   Foundation fighting KBD in China-   By: Lorna Chiu

From: McClatchy Newspaper, May 21st, 2007   -   Mysteious illness haunts Tibetan highlands -   By: Tim Johnson

From : Frankfurter Rundschau, April 28th, 2007   -     Krankheit der armen - Sie sind kleinwüchsig, haben ständig Schmerzen – Zehntausende Tibeter leiden unter der rätselhaften „Großen Knochenkrankheit“.   -   By : Harald Maass

From: Les Editions de l'Avenir
(Vers l'Avenir; l'Avenir du Luxembourg; Le Jour; le Courrier de l'Escaut; le Courrier), Thursday 2nd November, 2006 (N°255)   -   Humanitaires belges au Tibet. L’énigme de la maladie des gros os   -   By : René Smeets

Harbin Medical University (Heilongjiang province): news December 12th, 2005   -   Project Director of Belgian Kashin-Beck Disease (Control) Foundation- visit the Center for Endemic Disease Control   -   By: Zhang Xufeng

From: Le Journal du Médecin, Tuesday 30th August, 2005 (N°1691)   -   Le Tibet, les gros os et les champignons   -   By: Dr. Claude BIEVA

From: Taipei Times, September 30th, 2003   -   A "disease of poverty" strikes Tibet's villages

From: New York Times, September 29th, 2003  -   Stunted by Illness, Tibetan Villagers Ponder Flight   -   By: Jim YARDLEY

From: Médecins Sans Frontières   -   International Activity Report 2002. China, Tibet     -   MSF-USA: 2002 Activity Report - China

From: Médecins Sans Frontières   -   International Activity Report 2001. China, Tibet   -   MSF-USA: 2001 Activity Report - China -

From: Food Research Institute, FRI Newsletter Fall, September 4th 2001, Vol. 13, No. 3   -   World literature: Kashin-Beck Disease: Mycotoxins and Selenium   -   By: Ellin DOYLE

From: British Medical Journal, February 20th, 1999   -   Beijing conference reviews Kashin-Beck disease    -   By: Richard TOMLINSON



 
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